A children’s book presenting the different struggles that kids, who are diagnosed with autism, deal with everyday.

These little books are part of a series of 30 books that will explore the different levels of the Autism Spectrum. Being an autism dad myself, I have been inspired to show our youth what autism is all about. To my knowledge, there is close to no children’s book that talk about autism. This series has the target market of kids between the ages of 5 to 8 years of age. The plan is to have this book available throughout the country within a year, so that all kids get to learn about autism. The book is 7 inches by 7 inches, has a glossy cover and contains 26 pages. It is available in both official languages.
Book number 3 is almost here!
Book number 3 is almost here!

After a long period of writing and illustrating, I can finally say that the third book of the series will be available shortly. During that time period, a lot has happened for the book series, I have presented to schools the first two books in the northern region of New Brunswick, I Have also presented the books at the Moncton University in the Medical studies department.

These conferences alone, brought a lot of motivation to me as I could see just how aware the children were about autism. There is still a lot of awareness to be done.

The third book presents a day in school as experienced by my own son Sam. The teacher’s aide, that were and are with Sam, have helped me to write the story and gave me pointers on the experiences they had with Sam.

I am looking forward to have this book available, it really shows just how the presence of a teacher’s aide helps a lot in the development of a child. These services are what is provided to us in New Brunswick. These service are not available everywhere in our country. It is very important for a child with autism to have an aide with them as trying to fit in, at school, is already a stress in itself.

Lets hope that the other provinces are watching.

Sensory Friendly Viewing Cancelled in Moncton
Sensory Friendly Viewing Cancelled in Moncton

Told at the last minute

I just got back from the movie theater where our family was going to enjoy a sensory friendly viewing of the smurfs movie. We have been promising our son that we will be going to see the smurfs on Saturday May 6, 2017. For all of you parents who have a kid diagnosed on the spectrum, you know just how it is important for us to let our kids know of any events days, even weeks in advance.

So we showed up at the theater around 10 am this morning and tried to open the doors, they were locked. So we decided to wait. Then an employee came to the door and asked what we were doing here, we kindly told her that we are here for the sensory friendly viewing. She then proceeded in telling us that it was cancelled because they did not receive the smurfs movie at all.

Our son’s face went from excitement to disappointment and anger. He was so looking forward to this viewing, he talked about it all week. As an advocate for autism awareness, I decided to write an email to cineplex odeon to express my disappointment.

Here it is:

To whom it may concern,
Thank you!,

Thank you for letting us know that the sensory friendly viewing was cancelled at the movie theater door. We told our son all week that we would be going to see the smurfs movie this Saturday, only to be told, by one of your employees, at the door, that the viewing was cancelled because they have not received the movie for the sensory friendly viewing.

As a parent who has a son diagnosed on the spectrum of autism, I do not think that you are aware just how important it is for us to know about cancellations days, even weeks in advance. This cancellation, changed the whole day for us as we have to deal with our sons disappointment AND his anger towards us because we promised him a viewing of the Smurfs movie on Saturday May 6th.

To add salt to the wound, your employee told us that the movie was being shown in Dieppe. This is just an idea but maybe sit all of your employees down and explain to them the reason of the sensory friendly viewing. I do not think they get exactly why we have to lower the volume OR leave the lights on.

I myself am an advocate for autism awareness, if you need someone to come and explain to them what autism is about, I will gladly do a presentation and show them  just how complex autism is.

I really love the fact that we have sensory friendly viewings available in our area but please take the time to consider the ramification of a last minute decision. I know a lot of parents in the Moncton area who are now dealing with a very difficult situation in their hands because of this cancellation.

I have checked on Facebook to see if there was any notifications but came with nothing. This is unacceptable, please take the required measures to remedy to this situation.

Thank you

Patrick Hardy
Father, author, illustrator and advocate of autism awareness.

I hope that this email will be considered and read by the powers that be at Cineplex and that they will take the measures to remedy the situation.

Another great example of the why my books are important.  It did, however, inspire me for the subject of the 5th book now.

Let’s bring more awareness out there.

**UPDATE** Cineplex responds

On may 6 at 5:26pm EDT I got a reply email from cineplex:

Hello Patrick,

Thank you for contacting Cineplex Guest Services.

I am very sorry to hear about this experience. We have been notified by the theatre of this cancellation, and it turns out the theatre had been trying to receive a certain file of the film to show the sensory friendly screening but unfortunately did not receive it in time. As a result, they had no choice but to cancel the show. Management did advise us they updated their showtimes on the website on Thursday night to reflect this change. 

I will definitely forward your feedback regarding this experience to our Cineplex Trinity Drive location for their internal review and consideration to help ensure that something like this does not occur again in future. Additionally, I would be happy to offer you three (3) Courtesy passes so that you can come back for another movie at Cineplex on us. At your earliest convenience, please provide me with your full mailing address so that I can have these passes mailed out to you. Once again we sincerely apologize for the inconvenience and I look forward to hearing back from you.

Kind regards, 

Cassandra D.
Cineplex Entertainment | Guest Services

This was unsatisfactory for me as yet, they just offered me the routine office policy, brushing it off, in the hopes that it would shut me up.

Well:

Hello Cassandra,

thank you for your reply. Even though the gesture of giving us three tickets for free was a nice gesture, this is not what I am looking for.

A child diagnosed on the spectrum of autism is constantly bombarded by input, may it be visuals, sounds, smells and touch. For some, these inputs are so aggressive that they need anchors to rely on in their routine, so that there is some kind of order in the chaos.

The sensory friendly viewing event is one of those anchors for a lot of these kids. To have it cancelled, and told at the door, just creates more chaos for these kids which they did not need.

Trinity Cineplex Odeon say that they have not received the movie file in time. When was the movie file transferred to them? Could it be sent a week in advance?

Those three tickets you were offering us was a nice gesture but here is our reality. We do not go to the movie theater because the sound is way too loud and the lights are completely out, which does not go well with our son. This is why we attend the Sensory Friendly Viewing events because it is a lot let aggressive.

This has been the second time that someone has now offered us to go view a regular showing of a movie. Isn’t there anyone out there in your company that is Autism Aware?

I believe that an autism awareness course would be beneficiary for all the employees and managers working in the theaters that offer the Sensory Friendly Viewing option. That way, a last minute cancellation would not happen.

Thank you for the attention you are putting into this.

Patrick Hardy

Father, author, illustrator and advocate for autism awareness

Conferences and school visits in Bathurst
Conferences and school visits in Bathurst

French tour

On April 18th, after 5 pm, I left Moncton heading towards Bathurst for the french portion of my autism awareness tour. I was invited by the CFCAA / CAAFC to come and discuss the book with children in school from the ages of kindergarden to grade 3 and have a conference at night for anyone who would love to hear he story.

Once again everything went well. I was amazed at how the kids would be so interested in what I had to say and how curious they were about autism. During all presentations in school, I was presenting the fact that yes, children diagnosed on the spectrum of autism are different, but we are different as well. They experience life in a different way that we do and yet we all have different experiences in our life that make us look at life a different way.

Fig. 1

Fig. 2

Drawing to emphasize on differences.

I also asked the kids to complete a drawing, kind of like what I did with my son Sam. I asked them to complete the drawing on the right. (Fig. 1) I gave them 5 minutes to complete it. After the five minutes was up, I asked them to bring me all the drawings and told them that I would be able to find two drawings that are the same.

Needless to say that I didn’t. The kids loved this part. I, then, asked why I couldn’t find any two drawings that were the same, then the kids would answer that they were unique, different, original.

After we were done, I gave them another drawing to complete at home (Fig. 2), which I will complete as well and send via email to the schools I visited so that they can see what I have drawn.

Wednesday, April 19th, 2017

Cité de l'amitié

Cité de l’amitié

Cité de l’amitié (Bathurst)

I had a great time presenting in this school. They have put me in a room where there was a projector and The classes would come in to see me. I saw two classes at a time per groups. Had 3 sessions in this school. The kids were curious, the staff was very helpful and I just loved watching the kids being excited to complete a drawing just like my son did.

I enjoyed Cité de l’amitié, it is a great school.

 

Interview at CKLE

At noon, I had an interview at the local radio station. Sandra Landry welcomed me and Karen Chamberlain from the CFCAA / CAAFC to discuss about the conference that was going to be held at the NBCC that same day. Here is the link to it (It is in french):

Conference at NBCC

The conference was awesome, there were a lot of parents present. Everyone was listening with interest. I broke in tears a few times but they were tears of love and compassion as the subject, Autism, is a real close thing to my heart. After the conference, people stayed to talk and ask question. I sold books, art pieces and made very good connections with the people that were there.

 

Thursday, April 20th, 2017

Séjour Jeunesse (Green Point)

This small school is very dear to me. In my presentation, I believe that I had almost all the students that were attending the school. I have been made aware that this school was closing next year. Nevertheless, all the kids were really excited and interested in what I had to say.

The kids were so excited to complete the drawing, all of the completed drawings were so original and different. I had a blast presenting to them.

 

 

Le Tournesol (Petit-Rocher)

This school kept me busy for the rest of the day. I had 5 presentations to do in this school. They have placed me in a room were art supplies could be found on all the walls and shelves. So I took a crayons bin and asked the kids to complete the drawing while using these crayons.

Throughout the day, I have seen a lot of questions, excited aspiring artists and some kids on the spectrum as well. This school had the most presentation quota for the whole trip, what a great location and school. Right by the ocean.

 

Friday, April 21st, 2017

La croisée (Robertville)

This school really had a great venue for the presentation. They have put me in the auditorium. Even though there was a scheduling conflict, I still had 2 great presentations where the kids were interested and excited to hear about autism.

Again, great drawings were created during those two sessions. Very excited to send my compositions to that school when I am done creating them.

 

 

FX Daigle (Allardville)

The last school of the tour. They have put me in the school library. I was a little stressed at first as I was probably going to have to present without a powerpoint projector etc.. But in the end, everything worked fine.

The kids were interested and involved in the conversation. Met great people and great kids. I had to hand out the drawing to these kids as they didn’t have anything to draw with. But I did manage to get the message across to them.

 

All in all, it was a great experience. I enjoyed presenting the books in class and doing the conferences. It really motivated me to do a lot more in more school districts. I am already starting to get good feedback from the teachers that were present. All of them are positive, so far.